Tuesday, January 18, 2011
Update from the specialist today...
Took Kalib to his Pediatric Gastroenterologist today. I have mixed feelings about his treatment route, but I guess that is why I didn't graduate from medical school, LOL! For those of you tuning in that are not aware, Kalib has been through heck and back with his bowel issues. When Kalib was a baby, we noticed he did not poop like a normal baby. He would strain, have a rock hard tummy and then if we were "lucky" he would produce some little pebbles of poop. Kalib was always a very hungry baby and unfortunately had a bad reflux on top of it, so it was very common that Kalib would drink a bottle and proceed to throw it up ALL over. We're not talking a "normal" baby spitting up some formula, I'm talking exorcist, projectile vomitting. Throughout the years Kalib went to several different specialists, most of them were in Kansas City at Children's Mercy Hospital. Finally a local Pediatric Gastro opened up here and we switched immediately. She is not my favorite, but for now she is our only option. Well we went today after being urged to go by the ER doctors from last week (Kalib was very ill with a high fever, leg pain & numbness and constipation). Basically our course to a diagnosis is to start off with an MRI. She is looking for abnormalities with his spinal cord (Tethered Spinal Cord Syndrome). This would explain his bowel incontinence, urination incontinence and leg pain and numbness. However, I am just not sure on the rest of the symptoms or if this is really a solution to his problems. Again, I am not a doctor and I guess she is doing what she feels is best. I just want answers for him. I hate watching my son go through this. For almost 10 years now we have stood by, helplessly going from one doctor to another and trying our best to get a diagnosis only to get the run around every time. We even went the psychological route for the last year or so because they said "it could be behavioral" and "maybe it's a control issue...maybe start there". Well we did and nothing improved. So thank you all for your continued prayers and keep them coming as we begin another long trek to hopefully getting a full diagnosis and not just another pacifier for the symptoms.
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Hope you find some help for your son. I will keep him in my prayers! Love the blog, by the way:)
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